When we were at Dr. Troup's office on Tuesday, we learned that Emma will be having an EEG to ensure that she's not having seizures because she has some sudden, small but quick tremors/twitches in her left leg and especially her foot. He REALLY doesn't think she's having mini-seizures and that it's just an overactive reflex, but he has to be able to rule out the seizures. Dr. Troup ordered the EEG on Tuesday, and I received a call yesterday to have it scheduled. That's the quick of it.
The (not) easy of it is what it requires to GET the EEG. We knew that Emma would have to go in sleep-deprived because they need to see her brain activity both awake and asleep. Dr. Troup's scheduler questioned the EEG scheduler's instructions and still got the same answer: bring Emma in Monday morning (again, quick!) at 9:30 am, and do not allow her to sleep more than 4 hours the night before. You heard/read me. 4 hours. I could dangle Emma by her ankles in a hurricane, and she'd still be asleep. My conclusion: we'll do the best we can, even if that means being the trashy family who takes their 14-month-old to Waffle House in the middle of the night. After checking with Emma's sleep specialist on how to accomplish this impossible task, his nurse, Anne, said those instructions were incorrect. Two minutes after getting off the phone with Anne, I received a call from a veteran nurse in the neurology sleep lab with the instructions that we are to do what we think is best to bring Emma in sleep-deprived. She said that probably means depriving her of about 2 hours of sleep beyond her normal sleep time, but she doesn't know Emma. In order to get Nosy Rosy to go to sleep in a strange place with new people, her head coated in wires and goop and wrapped in gauze is going to require deprivation of about 3 to 5 hours. But still, that's heaven compared to the hell of no more than 4 hours of sleep! Praise God that we have nurses like Anne looking out for her and that I had the presence of mind to call Anne asking for help.
Yesterday was my dad's birthday, and we went to dinner at the Runway Cafe with my parents, Uncle John, Aunt Eva, Mama Jan, and John (Jan's husband, who clearly needs some sort of familial title). Emma loved on her Daddy like always, but she is getting awfully attached to Aunt Eva and Mama Jan. She played musical chairs for most of the dinner. I didn't get any pictures of Emma with the birthday boy, but she sure did enjoy herself. And she surely does love her Granddad.
No comments:
Post a Comment