Thursday, June 3, 2010

Sorry to bore you...

...but there's not much change with Emma. This is good and bad, I guess. Emma's choking episodes have been pretty bad today and very scary. She was pretty fussy for a good part of the afternoon because of her bad gas...of course. It kills me how it sounds so ordinary and routine to say that she has gas, but to see the pain on her face and hear the pain in her cries is just unbearable.

The big news for us is that we're moving to "the floor" tomorrow. "The floor" is the regular pediatric part of the Children's Hospital; we won't have as much one-on-one care as we have in the PICU, but Emma's not really depending on monitors or IV's or anything like that. Her medicine is minimal - the only thing administered by nurses is Zantac and Ativan on the rare occasion that we feel like we can't take her fussiness and restlessness anymore. We only do that when it's hard for her to breathe because she's so upset, and she's only gotten it 3 times. But phew, what a lifesaver it's been on those 3 occasions. Once we get to the floor, I don't know how long we'll stay, but we'll just stay the course: keep bottle feeding Emma and monitoring her oxygen levels and choking episodes.

Well, that's about it for now...see, I told you it was boring.

Please continue to pray for God's mercy on our sweet baby. We don't know what the future holds, but we're praying that God will grant us peace and our baby mercy from her pain and struggles. Please pray for Scilla, my sweet high school classmate, Betty's, sister. She is back in the hospital and is in a lot of pain. (Check out Betty's blog on the right side of my blog homepage.) God, please heal our pain and grant us your peace, mercy, and reassurance.

3 comments:

  1. So appreciate your blog. Keeps those who love you all connected to what is going on. Even the issue of gas! Praying for peace for Emma, you and Russell.

    ReplyDelete
  2. Praying for you all every day, MB.

    ReplyDelete
  3. I don't know you personally or your family, only through someone who has worked with your Mom; however, my heart aches for you as we continue to pray for God's mercy and miracles for your precious angel.

    ReplyDelete